How do I conduct research using genetic information?
The Genetic Information Nondiscrimination Act of 2008 (GINA) prohibits discrimination in health coverage and employment based on genetic information. If you conduct research using genetic information, you are responsible for becoming familiar with the provisions of the law, both to implement measures to protect genetic information from inappropriate disclosures and to inform potential research participants about their rights under the law.
Required GINA language is provided in the “TEMPLATE: Biomedical Template Consent Document (HRP- 592)” for you to include for participants.